They were taking part in an ethics debate where doctors and nurses were learning more about information giving and care planning for children and young adults with complex congenital heart disease.
Both of them used their personal journey to describe the different times when they had felt anxious or stressed and to talk more about how individual care is so important.
Well done both of you for bringing such an informed and mature voice to the debate.
Ben with his Mum Louise
Ben with Little Hearts Matter Chief Executive, Suzie
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