Sarah is a singer songwriter, who would love to travel and see the world. She talks about growing up as one of the oldest people with HLHS and the many hurdles she's had to overcome. Make sure to check out her YouTube channel - SarahAndTheRedGuitar!
"Life is tough for anyone these days. I am nearly 22 and for 20 of those years my family and I have had the support of Little Hearts Matters. I have been proud to represent the charity on many occasions, including the House of Lords and have even been on local TV on the politics show.
When I was younger I felt very much alone with my heart condition but then when we went on the activity weekends with LHM I realised I was not alone. There were other children with scars like mine! My parents have the motto “Take each day as it comes and live each day to the full” – I have every intention of doing that!"
Click here to read it in full.
You can help LHM to continue supporting children and young adults with half a heart this October by making your very own #handmadehearts. For more info on how to get involved click here. Make, Bake, Sew and Sell for children with Handmade Hearts. To donate to LHM please text MADE14 followed by a £ and the amount to 70070.
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