At the end of August, Suzie represented the charity at a cross London event organised by the GOS, Brompton
and Evelina/St Thomas’s team to help their patients beginning the move from Children’s to Adult
services.
Transition is for some a worrying time. Making the move from
the team that have looked after you since you were born to a completely new
team can be very daunting for the young adults as well as their parents. The Transition
Event was created to help young people understand what moving from one service
to another is all about and to explore issues about living with a congenital
heart condition. Many of the units also hold their own transition events where
their young patients can find out more about their own unit and meet the adult
cardiac team who will be looking after them.
This was a new event, hosted by the British Heart
Foundation, where lots of the national charities as well as the charities that
work at the three London hospitals were invited to let young people know about
the services they provide. I was there to talk about the Zipper Zone Youth
group which young LHM members from the age of 10 upwards can join. I had copies
of our newsletter and our new Youth stand which one of our youth members, Luke,
helped us create following his work on an art project. It was great to meet the teenager and some
young adults and chat to them about the challenges that they face. Some of them
gave me their details and will be joining the youth group which is great.
There were also lots of other organisations there
highlighting different services and support. Prospects – careers advise, Beat
Bullying and Changing faces helping people talk about their scars.
Thank
you to the teams that invited us to attend it was a great opportunity to talk
about what we do.
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